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vegmb, your card came today. Thank you, it was a lovely surprise!

My little nephew Romeo was taken into hospital today. He fell ill just around Christmas time, with his face/neck/shoulder area swelling up, first on one side, then the other. At first they thought it was an infection, but none of the antibiotics they used to treat him had any effect, and last month he had surgery to the worst affected of the lymph nodes, to drain some of the superfluous fluid, but the symptoms soon reappeared. They then thought he might have tb, so they kept him on an isolation ward for a week but the tests came back negative and he was sent home again with a course of penicillin, which again had no effect other than making him feel worse and break out in a rash.

He went in for a check-up this afternoon, and after detecting some unexplained clusters of nodules, they decided to admit him immediately and book him in for surgery tomorrow. They're going to do a biopsy; he'll be in surgery for an hour, and then we'll have to wait another week probably for the results to come back. They're working on the premise that it might be either Hodgkin's or non-Hodgkin's lymphoma. If it is, then we're encouraged to think that although treatment would most likely involve some form of chemo, there's a 90% survival rate in children.

Meanwhile, Romeo is getting pretty darn tired of all this poking and prodding. Apart from feeling tired and losing weight, he seems to be feeling okay, with no pain or fever; but he is going a little stir crazy as he hasn't been to school for the last 7 weeks and he's missing his friends and worried about falling behind. Also, he says he hates looking like a freak.

Needless to say, the last few weeks have been a bit of a tense time in the family, and likely to remain so until we know for sure what we're dealing with.


( 14 Speak Like A Child — Shout To The Top )
Feb. 8th, 2010 08:17 pm (UTC)
Poor kiddo. I'll keep him, and your family, in my prayers.
Feb. 8th, 2010 08:32 pm (UTC)
Thank you.
Feb. 8th, 2010 09:02 pm (UTC)
What a thing to have to go though so young. I have my fingers crossed for him.
Feb. 8th, 2010 09:16 pm (UTC)
It's definitely scary...We try not to jump to conclusions, but it's difficult to keep calm when the c-word has been mentioned.
Feb. 8th, 2010 10:25 pm (UTC)
Oh poor Romeo! I do hope they find out exactly what it is quickly so that they can begin to improve things for him.
Feb. 9th, 2010 10:27 pm (UTC)
He came through the surgery okay, but was disappointed to find he still had those bumps to the side of his face...poor kid. They're keeping him in tonight.
Feb. 8th, 2010 10:34 pm (UTC)
Oh sweetness, You are all in my thoughts and prayers.
Feb. 9th, 2010 10:27 pm (UTC)
Feb. 8th, 2010 10:40 pm (UTC)
Poor Romeo, I hope he is better soon. Your family is in my thoughts.
Feb. 9th, 2010 10:29 pm (UTC)
Thanks. He's a tough little guy, I'm sure he'll be alright.
Feb. 8th, 2010 11:16 pm (UTC)
I can't believe they operated in the first place without taking a biopsy. Also, if it is a lymph node infection rather than some form of lymphoma, I doubt penicillin would fix the problem!

I hope it gets sorted out soon though. Medical mysteries can be frustrating to say the least! Poor little guy. :(

Edited at 2010-02-08 11:17 pm (UTC)
Feb. 9th, 2010 10:33 pm (UTC)
Funny you should mention all that. I thought they were going about it all wrong, but it's not my area of expertise and so I've kept schtumm. Hopefully the biopsy will tell us more.
Feb. 9th, 2010 07:07 pm (UTC)
Poor little chap. I hope they get to the bottom of it and diagnose what the problem is.
Feb. 9th, 2010 10:34 pm (UTC)
Me, too.
( 14 Speak Like A Child — Shout To The Top )
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